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Tag: pkd

Posted on4 October 20204 October 2020Academic Life, Everyday Life, Health & Wellness, Musings & Ramblings

Working from home, pandemic style: Six months down, countless to go!

by Just FrancesLeave a comment on Working from home, pandemic style: Six months down, countless to go!

It’s been a little over six months since I began working from home full-time, and I am trying to prepare myself for another four months…

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Posted on26 August 20209 October 2020Chronic Illness, Health & Wellness, Musings & Ramblings

A surreal visit to The Real World for Bob and Dave

by Just FrancesLeave a comment on A surreal visit to The Real World for Bob and Dave

I visited The Real World today so that I could attend a hospital appointment for a routine check up on my kidneys, Bob and Dave.…

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Posted on23 January 20205 October 2020Chronic Illness, Health & Wellness

PKD and ketosis: A layman’s take

by Just FrancesLeave a comment on PKD and ketosis: A layman’s take

I participated in a webinar about research into Polycystic Kidney Disease (PKD) and ketosis the other day and was quite pleased to hear such a measured take…

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Posted on13 May 201910 September 2020Chronic Illness

Tolvaptan tales: Two years later

by Just Frances2 Comments on Tolvaptan tales: Two years later

Wow! It has now been two years since I started taking tolvaptan, a drug that is meant to slow the progression of polycystic kidney disease (PKD). I…

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Posted on14 May 201830 September 2020Chronic Illness

Tolvaptan tales: A one-year review

by Just Frances4 Comments on Tolvaptan tales: A one-year review

This past weekend marked one year since I started taking tolvaptan. In that year, I have learned quite a bit about how to manage the medication…

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Posted on12 March 201827 September 2020Chronic Illness, Health & Wellness

My PKD liver (or PKD-associated PLD)

by Just Frances2 Comments on My PKD liver (or PKD-associated PLD)

March is PKD Awareness month, so I thought I would take the time to talk about how PKD affects my liver. (Oh, yes, polycystic kidney…

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Posted on15 February 20186 October 2020Chronic Illness, Health & Wellness

PKD information and support day: A recap

by Just FrancesLeave a comment on PKD information and support day: A recap

Last weekend, I attended the ADPKD Information & Support Conference in Edinburgh. The event was hosted by Professor Neil Turner and the PKD Charity UK, supported…

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Posted on31 December 20179 December 2020Academic Life, Everyday Life, Musings & Ramblings

2017: Undone, indeed

by Just Frances2 Comments on 2017: Undone, indeed

2017 is over. It was meant to be my “year of doing” but, alas, it would seem that it was a year undone. Undone, indeed*.…

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Posted on16 September 20172 October 2020Chronic Illness

Tolvaptan tales: A four-month reflection

by Just Frances14 Comments on Tolvaptan tales: A four-month reflection

It has been about four months since I started taking tolvaptan, which is a great opportunity for an update. As with the post I shared about my experiences…

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Posted on10 June 201731 August 2020Chronic Illness

Tolvaptan tales: The beginning

by Just Frances10 Comments on Tolvaptan tales: The beginning

Last month I shared that I was getting ready to start a new medication called tolvaptan. The drug is meant to slow the progression of my kidney…

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Posted on11 May 201721 October 2020Chronic Illness

Talkin’ tolvaptan

by Just Frances25 Comments on Talkin’ tolvaptan

Tomorrow morning, I will start taking a new drug called tolvaptan, which is meant to slow the progression of my kidney disease. When I was first recommended…

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Posted on2 January 20171 October 2020Musings & Ramblings, Widow Life

Dating disclosures

by Just Frances2 Comments on Dating disclosures

Since (a few failed attempts at) re-entering the dating world post-widowhood, I have learned that there are many struggles to dating in the modern era. From the drama…

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Posted on9 April 201623 September 2020Chronic Illness, Health & Wellness

Normal kidneys

by Just Frances2 Comments on Normal kidneys

I had my annual kidney check-up a couple of days ago to see how Bob and Dave are coping with their inherited polycystic kidney disease. And I am…

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Posted on28 September 201526 September 2020Fitness & Exercise, Health & Wellness

Saving the best for last!

by Just FrancesLeave a comment on Saving the best for last!

I ran my last Loch Ness Marathon yesterday. (Maybe.) And I accomplished a PB whilst doing it—which was totally unexpected. Even better, I am nowhere…

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Posted on11 March 201527 September 2020Chronic Illness, Health & Wellness

My PKD story

by Just FrancesLeave a comment on My PKD story

As part of World Kidney Day and National Kidney Month, the PKD Foundation has asked people to share their PKD story. This is mine. First, some key bits of information…

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Posted on18 September 201425 September 2020Chronic Illness, Health & Wellness

Bob and Dave’s 2014 review

by Just Frances4 Comments on Bob and Dave’s 2014 review

Today was Bob and Dave’s annual check-up, to determine just how well they’re coping with life. Bob and Dave, if you don’t know, are my…

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Posted on16 July 201421 October 2020Chronic Illness, Fitness & Exercise, Health & Wellness

Running with PKD

by Just Frances12 Comments on Running with PKD

Disclaimer: I am not a medical professional nor do I have any professional health or fitness qualifications. This story is about my own personal views, opinions, and experiences…

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Posted on22 August 201325 September 2020Chronic Illness, Health & Wellness

Bob & Dave: Just normal

by Just Frances2 Comments on Bob & Dave: Just normal

Today was my annual check-up for my kidneys, Bob and Dave. I’ve been really nervous about it because I know that the last year hasn’t been…

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Posted on12 August 201327 September 2020Health & Wellness, Musings & Ramblings

When I close my eyes

by Just FrancesLeave a comment on When I close my eyes

Sometimes I like to close my eyes and imagine the life I want. It’s by no means an extravagant life—it doesn’t even include winning the…

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Posted on13 May 201319 September 2020Cooking, Crafting & Creating, Everyday Life

A kidney tree

by Just Frances2 Comments on A kidney tree

A couple of years ago, I drew a silly little ‘kidney tree’ to illustrate a story about my kidneys, Bob and Dave. It humoured me, but…

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About Just Frances

Just Frances is a silly and pointless website maintained by me, Frances Ryan. I am a quirky runner, writer, thinker, drinker, and researcher. I am also a daughter, sister, aunty, friend, and widow. But mostly, I am just Frances.

I blog about my life, including my travels and adventures, my experiences with PKD and ITP, my life as a young(ish) widow, and my life in general, really. Learn more about the topics I write about here.

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