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Just Frances

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Tag: pkd

Posted on14 August 202126 August 2021Chronic Illness, Health & Wellness

Thanks for the health, COVID!

by Just FrancesLeave a comment on Thanks for the health, COVID!

As I look back over my (general) health over the last 18 months, I am struck by how healthy I have been. And, ironically, it’s…

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Posted on13 May 20214 July 2021Chronic Illness

Tolvaptan tales: Four years on

by Just Frances2 Comments on Tolvaptan tales: Four years on

It has been four years since I started taking tolvaptan for my kidneys and I thought it was time for another update – especially as…

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Posted on4 October 20204 July 2021Academic Life, Everyday Life, Health & Wellness, Musings & Ramblings

Working from home, pandemic style: Six months down, countless to go!

by Just FrancesLeave a comment on Working from home, pandemic style: Six months down, countless to go!

It’s been a little over six months since I began working from home full-time, and I am trying to prepare myself for another four months…

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Posted on26 August 20204 July 2021Chronic Illness, Health & Wellness, Musings & Ramblings

A surreal visit to The Real World for Bob and Dave

by Just FrancesLeave a comment on A surreal visit to The Real World for Bob and Dave

I visited The Real World today so that I could attend a hospital appointment for a routine check-up on my kidneys, Bob and Dave. The…

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Posted on23 January 20204 July 2021Chronic Illness, Health & Wellness

PKD and ketosis: A layman’s take

by Just FrancesLeave a comment on PKD and ketosis: A layman’s take

I participated in a webinar about research into Polycystic Kidney Disease (PKD) and ketosis the other day and was quite pleased to hear such a measured take…

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Posted on13 May 201916 July 2021Chronic Illness, Health & Wellness

Tolvaptan tales: Two years later

by Just Frances2 Comments on Tolvaptan tales: Two years later

Wow! It has now been two years since I started taking tolvaptan, a drug that is meant to slow the progression of polycystic kidney disease (PKD). I…

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Posted on14 May 201830 July 2021Chronic Illness

Tolvaptan tales: A one-year review

by Just Frances6 Comments on Tolvaptan tales: A one-year review

This past weekend marked one year since I started taking tolvaptan. In that year, I have learned quite a bit about how to manage the medication…

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Posted on12 March 201819 October 2022Chronic Illness, Health & Wellness

My PKD liver (or PKD-associated PLD)

by Just Frances2 Comments on My PKD liver (or PKD-associated PLD)

March is PKD Awareness month, so I thought I would take the time to talk about how PKD affects my liver. (Oh, yes, polycystic kidney…

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Posted on15 February 201828 September 2022Chronic Illness, Health & Wellness

PKD information and support day: A recap

by Just FrancesLeave a comment on PKD information and support day: A recap

Last weekend, I attended the ADPKD Information & Support Conference in Edinburgh. The event was hosted by Professor Neil Turner and the PKD Charity UK, supported…

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Posted on31 December 201729 July 2021Academic Life, Everyday Life, Musings & Ramblings

2017: Undone, indeed

by Just Frances2 Comments on 2017: Undone, indeed

2017 is over. It was meant to be my “year of doing” but, alas, it would seem that it was a year undone. Undone, indeed*.…

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Posted on16 September 201729 July 2021Chronic Illness

Tolvaptan tales: A four-month reflection

by Just Frances18 Comments on Tolvaptan tales: A four-month reflection

It has been about four months since I started taking tolvaptan, which is a great opportunity for an update. As with the post I shared about my experiences…

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Posted on10 June 201729 July 2021Chronic Illness

Tolvaptan tales: The beginning

by Just Frances12 Comments on Tolvaptan tales: The beginning

Last month I shared that I was getting ready to start a new medication called tolvaptan. The drug is meant to slow the progression of my kidney…

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Posted on11 May 201718 October 2021Chronic Illness

Talkin’ tolvaptan

by Just Frances25 Comments on Talkin’ tolvaptan

I will start taking a new drug called tolvaptan tomorrow morning to slow the progression of my kidney disease. When I was first recommended for the drug,…

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Posted on2 January 201729 July 2021Chronic Illness, Musings & Ramblings, Widow Life

Dating disclosures

by Just Frances2 Comments on Dating disclosures

Since (a few failed attempts at) re-entering the dating world post-widowhood, I have learned that there are many struggles to dating in the modern era. From the drama…

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Posted on9 April 201628 July 2021Chronic Illness, Health & Wellness

Normal kidneys

by Just Frances2 Comments on Normal kidneys

I had my annual kidney check-up a couple of days ago to see how Bob and Dave are coping with their inherited polycystic kidney disease. And I am…

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Posted on28 September 201527 July 2021Fitness & Exercise, Health & Wellness

Saving the best for last!

by Just FrancesLeave a comment on Saving the best for last!

I ran my last Loch Ness Marathon yesterday. (Maybe.) And I accomplished a PB whilst doing it – which was totally unexpected. Even better, I am nowhere…

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Posted on11 March 201529 March 2022Chronic Illness, Health & Wellness

My PKD story

by Just FrancesLeave a comment on My PKD story

As part of World Kidney Day and National Kidney Month, the PKD Foundation has asked people to share their PKD stories. This is mine. First, some key bits of information…

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Posted on18 September 201424 July 2021Chronic Illness, Health & Wellness

Bob and Dave’s 2014 review

by Just Frances4 Comments on Bob and Dave’s 2014 review

Today was Bob and Dave’s annual check-up, to determine just how well they’re coping with life. Bob and Dave, if you don’t know, are my…

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Posted on16 July 201423 July 2021Chronic Illness, Fitness & Exercise, Health & Wellness

Running with PKD

by Just Frances12 Comments on Running with PKD

Disclaimer: I am not a medical professional nor do I have any professional health or fitness qualifications. This story is about my own personal views, opinions, and experiences…

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Posted on22 August 201321 July 2021Chronic Illness, Health & Wellness

Bob & Dave: Just normal

by Just Frances2 Comments on Bob & Dave: Just normal

Today was my annual check-up for my kidneys, Bob and Dave. I’ve been really nervous about it because I know that the last year hasn’t been…

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About Just Frances

Just Frances is a personal website maintained by me, Frances Ryan. I am a quirky runner, writer, thinker, drinker, crafter, adventurer, and researcher. I am also a daughter, sister, aunty, friend, and widow. But mostly, I am just Frances. (She/Her)

I blog about my life, including my travels and adventures, my experiences with PKD and ITP, my life as a young(ish) widow, and my life in general, really. Learn more about the topics I write about here.

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