I visited The Real World today so that I could attend a hospital appointment for a routine check up on my kidneys, Bob and Dave.…
I participated in a webinar about research into Polycystic Kidney Disease (PKD) and ketosis the other day and was quite pleased to hear such a measured take…
Wow! It has now been two years since I started taking tolvaptan, a drug that is meant to slow the progression of polycystic kidney disease (PKD). I…
This past weekend marked one year since I started taking tolvaptan. In that year, I have learned quite a bit about how to manage the medication…
2017 is over. It was meant to be my “year of doing” but, alas, it would seem that it was a year undone. Undone, indeed*.…
It has been about four months since I started taking tolvaptan, which is a great opportunity for an update. As with the post I shared about my experiences…
Last month I shared that I was getting ready to start a new medication called tolvaptan. The drug is meant to slow the progression of my kidney…
Tomorrow morning, I will start taking a new drug called tolvaptan, which is meant to slow the progression of my kidney disease. When I was first recommended…
I have just completed my slowest-ever 10K race and I don’t know how I feel about that. I am embarrassed and humiliated—and very angry with…
I’m not new to the Scottish National Health Services (NHS), having had my first experience with them about 10 years ago, but I guess that…
I’m running my first—and last—ever marathon in the morning. I’m pretty excited about it, but at the same time I’m rather dreading it. You see,…
Bob and Dave* are my kidneys. Bob to my left; Dave to my right. Both are riddled with cysts and are considerably larger than normal…
Friday eve is here and I’m celebrating with a cold bottle of Pyramid Brewery’s Haywire Hefeweizen and a bowl of pretzels. It’s strange because, if…
My friend posted a list of 100 random things her daughter wrote about herself out of boredom and I thought I’d give it a shot…
My aunt received a new(ish) kidney today, courtesy of a very dear friend of the family. (We’ve always said that Jeanne was part of the…
I love food. Expensive food, cheap food, homemade food, and overly-processed food-like substances. The last is a group that I don’t get to enjoy often,…