I visited The Real World today so that I could attend a hospital appointment for a routine check-up on my kidneys, Bob and Dave. The…
Whilst I was in Cambridge last week, things were starting to accelerate with the spread of the Coronavirus that causes COVID19. News from America and…
I participated in a webinar about research into Polycystic Kidney Disease (PKD) and ketosis the other day and was quite pleased to hear such a measured take…
I don’t know about you, but I find annual resolution-setting to be a challenge in itself. I love the idea of a strong resolution to…
Wow! It has now been two years since I started taking tolvaptan, a drug that is meant to slow the progression of polycystic kidney disease (PKD). I…
As is tradition, a new year means a new resolution. Generally, my resolutions are set as a way to focus on self-improvement in realistic terms.…
And with that, my Marcothon days are over. Yes, I have failed in my attempt to run every day throughout December. But at least my attempt means…
I ran today. And I will run tomorrow. And the next day. And, if all goes well, I will be running every day in December.…
I took part in a fun, blood-themed scavenger hunt yesterday. The event, Bloodscape, was designed to explore changing blood trends as part of the 2018 Being Human…
Remember when I talked about the frustrations of the chronically ill? Well, my failed plans for an active November are a part of that frustration! Yes,…
I have been thinking about illness a lot lately. Especially about the frustrations of being chronically ill. Even more about the frustrations of being chronically…
It was nearly five years ago that I first felt a lump in my breast and panicked about the possibility of cancer. At that time, a quick…
At the start of the year, I set myself a gentle running goal: A simple sub-30 5K. I chose the goal because I knew it…
This past weekend marked one year since I started taking tolvaptan. In that year, I have learned quite a bit about how to manage the medication…
March is PKD Awareness month, so I thought I would take the time to talk about how PKD affects my liver. (Oh, yes, polycystic kidney…
I took the weekend off from my PhD studies to re-focus my brain with some healthy fresh air. On Saturday, I did that by exploring St Anthony’s Chapel and climbing…
Last weekend, I attended the ADPKD Information & Support Conference in Edinburgh. The event was hosted by Professor Neil Turner and the PKD Charity UK, supported…
2017 is over. It was meant to be my “year of doing” but, alas, it would seem that it was a year undone. Undone, indeed*.…
It has been about four months since I started taking tolvaptan, which is a great opportunity for an update. As with the post I shared about my experiences…
Last month I shared that I was getting ready to start a new medication called tolvaptan. The drug is meant to slow the progression of my kidney…