My six-year update isn’t far off my four-year update. So, I will send you there for the general details of my life on tolvaptan. Instead,…
Today marks 17 years since I became Mrs Ryan. And despite the absence of Mr Ryan, I like to mark this day as it was…
It’s another new year, and I feel it’s going to be a chaotic one. Which is more reason for me to set some goals and…
I received my COVID19 booster vaccine last Sunday and am now fully vaccinated against COVID19 – and more! I don’t know if this makes me…
Today is the start of Global ITP Awareness Week, an international event that takes place during the USA’s National ITP Awareness Month. And so, as…
As I look back over my (general) health over the last 18 months, I am struck by how healthy I have been. And, ironically, it’s…
Now that I am fully vaccinated and the COVID19 situation in Scotland seems to be improving, I am beginning to take baby steps back into…
It has been four years since I started taking tolvaptan for my kidneys and I thought it was time for another update – especially as…
I received my second dose of the Oxford/AstraZeneca COVID19 vaccine late last week and am now fully vaccinated against COVID19. After more than a year of…
Regular readers will know that I have been (mostly) isolating since 13 March 2020. This is because I am on the shielding list due to…
I visited The Real World today so that I could attend a hospital appointment for a routine check-up on my kidneys, Bob and Dave. The…
Today marks five months since I began my COVID19 isolation at my countryside cottage. During Month One and Month Two, my isolation was just that: Isolating (but I coped)! Month…
Today marks one month of COVID19 self-isolation for me. My isolation began shortly after returning from my relaxing holiday in Cambridge and about 10 days before…
I participated in a webinar about research into Polycystic Kidney Disease (PKD) and ketosis the other day and was quite pleased to hear such a measured take…
Wow! It has now been two years since I started taking tolvaptan, a drug that is meant to slow the progression of polycystic kidney disease (PKD). I…
Remember when I talked about the frustrations of the chronically ill? Well, my failed plans for an active November are a part of that frustration! Yes,…
I have been thinking about illness a lot lately. Especially about the frustrations of being chronically ill. Even more about the frustrations of being chronically…
This past weekend marked one year since I started taking tolvaptan. In that year, I have learned quite a bit about how to manage the medication…
March is PKD Awareness month, so I thought I would take the time to talk about how PKD affects my liver. (Oh, yes, polycystic kidney…
Last weekend, I attended the ADPKD Information & Support Conference in Edinburgh. The event was hosted by Professor Neil Turner and the PKD Charity UK, supported…