It has been about four months since I started taking tolvaptan, which is a great opportunity for an update. As with the post I shared about my experiences…
Last month I shared that I was getting ready to start a new medication called tolvaptan. The drug is meant to slow the progression of my kidney…
I will start taking a new drug called tolvaptan tomorrow morning to slow the progression of my kidney disease. When I was first recommended for the drug,…
Since (a few failed attempts at) re-entering the dating world post-widowhood, I have learned that there are many struggles to dating in the modern era. From the drama…
Regular Just Frances readers will know that I have a rare bleeding disorder called idiopathic thrombocytopenic purpura (ITP). But what they may not know is that…
I had my annual kidney check-up a couple of days ago to see how Bob and Dave are coping with their inherited polycystic kidney disease. And I am…
It’s been more than three weeks since I was first stricken with a nasty little virus, and I am still on the road to recovery.…
As part of World Kidney Day and National Kidney Month, the PKD Foundation has asked people to share their PKD stories. This is mine. First, some key bits of information…
This guest post was written by Anthony Heard, ITP patient and volunteer, as part of my ITP Awareness Month Iceless Challenge. If you want to share your own ITP story…
Today was Bob and Dave’s annual check-up, to determine just how well they’re coping with life. Bob and Dave, if you don’t know, are my…
This guest post was written by Kimberly Light, mother to a 6-year-old ITP patient, as part of my ITP Awareness Month Iceless Challenge. If you want to share…
This guest post was written by Anthony Heard, ITP patient and volunteer, as part of my ITP Awareness Month Iceless Challenge. If you want to share your own ITP story…
This guest post was written by my youngest sister, Royann. My desire for ITP Awareness Month is to help educate others and I’m pleased that this post…
Right! It’s ITP Awareness Month again so let’s start raising some awareness! I decided to tackle awareness month differently this year because I think we…
Disclaimer: I am not a medical professional nor do I have any professional health or fitness qualifications. This story is about my own personal views, opinions, and experiences…
It’s September and that means that it’s ITP Awareness Month. So I thought I’d share a bit more about my ITP journey with you to give…
Today was my annual check-up for my kidneys, Bob and Dave. I’ve been really nervous about it because I know that the last year hasn’t been…
Today is International Rare Disease Day. It’s a day when people around the world band together to make a lot of racket about something that impacts…
Today I want to talk about my belly; my slightly-larger-than-it-should-be belly. And, in a way, I want to talk about my crazy brain and its…
One day, a stranger saved my life. Actually, it was probably more than one stranger and it probably happened over a series of days. And…